THE BLOG
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Just Pacing It: Living with a Pacemaker-Dependent 2 Year-Old
This afternoon I finally pulled out the Medtronic device that the hospital staff had given us just over a year ago after Asher’s second open heart surgery. He was just a few months shy of his 2nd birthday, and needed to get a sub-aortic membrane removed. It was intended to be a quick and easy fix, but the morning of we were informed by the surgeon that there were several other concerns that had developed in his heart. Long story short, Asher was in the operating room for roughly 12 hours and ended up with complete heart block, which required...
Surviving with a Quarantined Heart Warrior
One of the trickiest parts of being heart parents over the last 6 months has been putting our heart warrior under quarantine. Last August Asher had a catheter surgery to place some new pacemaker leads in his heart to help his ventricles squeeze in sync with one another, and the morning after he was released from the hospital, he went into shock – dehydration, vomiting, crying, and eyes rolling in the back of his head. My folks were visiting from Idaho, and so my dad and I rushed Asher to the Emergency Room a few miles away. From there, they...
Heart Month is Over: Now What?
We’ve always known hearts to be associated with Valentines Day, but until we had a CHD warrior of our own, we never knew “CHD Awareness” week existed, let alone “Heart Month.” Watching CHD advocates from around the globe flooding social media with CHD facts and statistics, stories of their warriors, and doing everything within their means to raise awareness of congenital heart disease was incredible and inspiring! But now that February is over…now what? What will we, as a CHD community, do to continue to raise awareness of CHD? We’ve been very impressed with the things that some of our...
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